For You, the World…

Burning Bridges for Your Child: The Fierce Love of a Parent

Every parent knows that the journey of raising a child is filled with incredible highs and daunting lows. But for parents of children with unique needs, it can often feel like a battle. We find ourselves willing to do anything, even if it means burning bridges, to secure the best possible outcomes for our children.
The fight for your child’s needs can often feel isolating. Whether it’s advocating for appropriate educational resources, pushing for necessary therapies, or simply trying to be heard in a system that often feels stacked against us, the struggle is real. It’s a journey that calls on every ounce of our knowledge, resilience, and courage.


The Good Fight

Fighting for what your child needs isn’t just about navigating complex systems; it’s about maintaining an unwavering belief in their potential. We become well-versed in special education laws, therapies, and resources. We attend meetings, research options, and network with other parents. Every step we take is fueled by love and the desire to ensure our children have the opportunities they deserve.
However, as we become more knowledgeable and assertive, we may find ourselves clashing with friends, family, or even educators who don’t understand the demands of our journey. When you challenge the status quo or demand that your child’s needs are met, it can be uncomfortable for those around you. Suddenly, the very people who once formed your support network may question your choices—or worse, pull away.

A Smaller Village

This is the paradox of advocacy: while the fight can bring clarity and direction, it can also lead to feelings of loneliness as we carve out a path that others may not understand. The village that once felt robust may shrink as we prioritize our child’s needs over maintaining every relationship. This doesn’t mean that we stop caring about our friendships or family; rather, it signifies a shift in focus.
We learn to surround ourselves with those who genuinely support our mission. Sometimes, this means saying goodbye to relationships that don’t uplift us or our children. It’s a difficult decision, but the need to protect our child’s interests and emotional well-being leads us to make choices that prioritize their growth over social comfort.

Finding New Connections

As the landscape of our village changes, it also opens up a new realm of opportunities. By seeking out connections with other parents who share similar experiences, we can create a supportive community that understands the depth of our struggles. These new friendships can be sources of strength, inspiration, and even joy.
In this journey, it becomes clear that advocacy is not a solo endeavor. It transforms into a collective effort with others who are fighting similar battles. We band together, sharing resources, strategies, and stories that reinforce the notion that our children are not alone in their struggles.

Conclusion

In the end, while you may find that your village grows smaller, it’s essential to recognize that the relationships you maintain are likely to be more meaningful, valuable, and supportive. The bridges we burn can lead to new paths—ones filled with understanding, compassion, and a shared commitment to seeing our children thrive.

So to every parent out there ready to fight the good fight: your journey is valid, your voice matters, and you are not alone. Embrace the path you’re on, and know that it will ultimately lead to a stronger community—one that champions each child’s potential and worth.

Nicole Prus

Advocacy & Training to Support the Special Education Process

https://neuroaccessconsulting.com
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Did you know DESE has done away with the primary, secondary and tertiary disability eligibility criteria with the New IEP form?